Writing Opportunity – Want To See Your Story In A Book?

WRITING OPPORTUNITY! We are currently working with a publishing company to release an uplifting book about chronic illness, and we’re looking for writers to submit their personal stories! All royalties from sales of the book will be donated to Spoonie Survival Kits and used to fund the creation of future kits. We’ll pick a handful …

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Waves Book Launch – September 2016

A little while ago, Spoonie Survival Kits were kindly invited to attend the book launch of Waves, Jared A Carnie’s debut novel, in Sheffield. I met Jared last year through my spoonie friend Faye, and they’re both the loveliest, most talented people. On the night, copies of Waves were available to attendees in return for donations. …

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Spoonie Survival Kits

Why ‘Spoonie’ Survival Kits?

One question we often get asked is the meaning of the word ‘Spoonie’. Those of us who have been in the chronic illness community for a long time often forget that it isn’t actually a part of others’ everyday vocabulary, so here we’ve put together a short explanation of where the word ‘Spoonie’ comes from, …

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New Charity: POTS UK

We’re really pleased to have POTS UK on board as our next charity, we’re hoping to raise £500 for them! POTS (Postural Tachycardia Syndrome) is a debilitating autonomic disorder that is often undiagnosed, especially in young people, due to a lack of awareness/ understanding of the condition. POTS UK is a fab charity that aims to …

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£500 For Fibromyalgia Action UK!

Yay, just hit our fundraising target of £500 for Fibromyalgia Action UK to contribute towards the amazing work they do, raising awareness and supporting sufferers of Fibromyalgia. Massive thank you to Ella Vine for your support, and also to anybody who bought a kit in the last few months! That brings our overall total to over …

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